The proceeds from our fundraisers will benefit the STXBP1 Foundation in support of our patient registry, family meetings or to support research. The work accomplishedvolunteer-page_256086952 to date was made possible by the hard work of our parents and by their donations. We are busy parents working full-time jobs who would do anything for our children and we know that you also have many unique talents.  We want to leverage your unique skill-set difference for our STXBP1 Family.

Please complete the form and let us know where your interests lie.  As you know, STXBP1 is an orphaned disease and our parent organization is just beginning to grow so bear with us on this painful yet inspiring journey for a cure.

Your Name (required)

Your Email (required)

Telephone Number

City & State

Areas of Interest (Check all that apply)
Event PlanningAttend EventDonationCommunicationFundraisingGrant WritingWeb SupportTax SupportGraphic Design

How Much Time you can devote (hrs)?