STXBP1 and the Global Genes Carousel of Possible Dreams
STXBP1 Disorders/Foundation needs your help to fulfill our Possible Dream!
Our DREAM is to build a better future and ultimately cure our children with STXBP1 Disorders! In order to achieve this, we will hold the first ever global workshop/conference where families can learn about current research in STXBP1, communicate their vision of success, and where we will ultimately devise a long-term strategy in which we invest our resources. With the support of our global families and world-class scientific advisors we will Lead the Charge for a Cure.
We have endless gratitude for Global Genes and Festival of Children for bringing awareness to our beautifully, rare children.
OUR GOAL: $40,000
Click here to donate today.
We have taken on the challenge as a team to raise these critical funds. With YOUR support, our team can do it. Every gift counts. Together, we can turn our DREAM into REALITY!