Events

Upcoming Events

 

THE RARE CAROUSEL OF POSSIBLE DREAMS

The RARE Carousel is a unique partnership between Festival of the Children Foundation and Global Genes that provides an exciting and innovative way for RARE disease organizations to raise funds, cultivate new donors, and increase awareness. The STXBP1 Foundation is excited to be a participating organization in the 2018 RARE Carousel this Feb 1 – Mar 15. Click here for more details and jump on the carousel today.


Past Events

 

American Epilepsy Society (AES) Dec 1 – 4, 2017 

Jennifer and Stephanie staffing our stand in DC. Along with our presence onsite at the convention, we also held a Parent Dinner.

See us at future AES conferences.

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1st Annual STXBP1 5K Run and Walk, Oct 21, 2017

Live Venue: Devola Park 820 River Road, Marietta, OH 45750
Date: Sat, October 21, 2017
Time: 8am – 12pm

Virtual Venue: 2001 Hamilton Street, Philadelphia PA 19130

Click here for more details

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Stick it to STX Charity Ball

Date: February 18th, 2017
Location: Doylestown Country Club
RSVP Here

STXBP1 Parent’s Luncheon

Date: September 24th, 2016
Location: Philadelphia, Maggiano’s

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STXBP-1-Team

CSL Behring Check Presentation Ceremony

Date: June 17, 2016
Location:Children’s Hospital of Philadelphia