STXBP1 News

STXBP1 News

6/21/2019: Read the results of our first Scientific Investigators & Family Meeting (SIFM) including session recaps and participant surveys here

5/21/2019: CURE Discovery: New Genetic Models of Epileptic Encephalopathies Deepen Our Understanding (read article)

Archives

STXers Plan a trip to Disney March 2017
Emma Rose Make-A-Wish Trip February, 2017
Parents Come Together for Parents Luncheon in Philadelphia March 2017
CHoP Receives Corporate Donations from CSL Behring June 6, 2016
Parents Hold First STXBP1 Charity Ball February 20, 2016