STXBP1 News

STXBP1 News

“A Battle Plan for a War on Rare Diseases”
Dr. Matthew Might is developing a strategy for people seeking treatments for little-known ailments.
View A Battle Plan for a War on Rare Diseases – The New York Times 09102018 here.
New York Times, September 10, 2018

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Emma Rose Make-A-Wish Trip (February, 2017)

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Parents Come Together for Parents Luncheon in Philadelphia (March 2016)

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CHoP Receives Corporate Donations from CSL Behring (June 6, 2016)

 

 

 

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Parents Hold First STXBP1 Charity Ball (February 20, 2016)