STXBP1 Investigator and Family Meeting (SIFM)

The STXBP1 Foundation and the Center for Cellular and Molecular Therapeutics (CCMT), will be hosting our 1st ever STXBP1 Investigators and Family Meeting (SIFM) on June 21, 2019 and June 22, 2019 in Philadelphia. Families can REGISTER NOW for Saturday’s events.

Friday, June 21 will be dedicated to Investigators ONLY and will be held at CHoP. This is where Investigators will have the opportunity to present STXBP1 research and interact with other scientists studying the gene. Investigators will have a chance to interact with our families during the banquet and poster session that night. On Saturday, June 22, our sessions will be held at the Sheraton University Center and here is where parents, family, and other caregivers will have an opportunity to learn about research that is built and presented for the non-scientific community.

Your participation at the SIFM is invaluable to the STXBP1 Foundation as discussions and information gleaned will assist the Foundation and the Scientific Advisory Board to build a scientific roadmap. This output will inform future decisions and drive future investments by the STXBP1 Foundation. Through this interaction we hope to drive research in a manner that has the greatest potential to provide better therapies and ultimately, a cure.

 It is our belief that the relationships formed between families and researchers will improve the quality of research and ultimately, a cure!

DRAFT AGENDA for preliminary planning is below

Families can register now.

More information to come.