STXBP1 Foundation Compliance & Transparency

Welcome to the STXBP1 Foundation’s compliance page.  As a 501c3 we embrace the values of transparency and accountability in all we do, and we work hard through our partnerships to ensure our organization is adhering to all applicable laws and regulations. Our 501c3 was established under the STXBP1 Foundation and may also operate as STXBP1 Disorders. It was important to our board that we did not lose the branding and relationships that were built under the  STXBP1 Disorders name, so we decided to bring this brand forward.

We would like to thank Harbor Compliance for their professional assistance and guidance during the acquisition of our nonprofit status.  Harbor Compliance continues to be a valuable resource to the STXBP1 Foundation in helping us to navigate the many facets of the nonprofit world.

Our generous board has made personal contributions towards the operational expenses of the STXBP1 Foundation. Therefore, donors can rest assured that donations will be applied directly toward the mission of the STXBP1 Foundation.

We have listed links below to various compliance agencies in which we are listed or which represent us, as well as a link to our IRS non-profit determination letter.

Questions?  Please contact us

Useful Links